Register 4 Webinars

Webinar 008: The Seven Things You Need To Know About Clinical Trials for Rare Diseases

Do you have a rare disease? Does your child have a rare disease?

If you answered yes to either or both of these questions, it is crucial that you attend Webinar 008. Webinar 008 will give important information about clinical trials for rare diseases.

Webinar 008 will be held on 12 June 2019 at 8:00 AM PST [11:00 AM EST; 5:00 PM Central European] to 9:15 AM PST [12:15 PM EST; 6:15 PM Central European].

Webinar 008 is free to patients and parents of children with rare diseases. Paid or professional patient advocates will be asked to make a small donation of 5 USD payable by PayPal or Credit/Debit Card

There’s No Better Time To Register for webinar 008 Than The Present!

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Webinar 008 is free to patients and parents of children with rare diseases Paid or professional patient advocates will be asked to make a small donation of 5 USD payable by PayPal or Credit/Debit Card at www.prdpf.org using the Donate button.

During Webinar 008, you will learn the following seven things

About the drug development process

Why clinical trials are important

About the phases of clinical trials

How clinical trials are designed

Why clinical trials fail

About the informed consent process

You will be able to ask the questions about clinical trials you have not been able to ask up to this point

Reminder – If you have a rare disease you should register for Webinar 008. We regret that recordings will not be made of these Webinars. We want to ensure that patients and parents feel comfortable asking questions in a confidential way.

Webinar 009 - The A, B, Cs of Clinical Trials for Blood Cancers

Have you been diagnosed with a Blood Cancer? Blood cancers include cancers such as Leukemia, Non Hodgkin’s Lymphoma, Acute Myeloid Leukemia, or any other blood cancer. Has your child been diagnosed with leukemia, or a blood cancer?

If you answered yes to either or both of these questions, it is crucial that you attend Webinar 009, The A, B, Cs of Clinical Trials for Blood Cancers. This Webinar will be given personally by Dr. Lorna Speid. She is going to present on the approaches that are being taken with clinical trials for Blood Cancers.

Webinar 009 will be held on 19 June 2019 at 8:00 AM PST [11:00 AM EST; 5:00 PM Central European] to 9:15 AM PST [12:15 PM EST; 6:15 PM Central European].

Video of flowing blood (red blood cells and white blood cells)

There’s No Better Time To Register for webinar 009 Than The Present!

Days
Hours
Minutes
Seconds

Webinar 009 is free to patients and parents of children with rare diseases
Paid or professional patient advocates will be asked to make a small donation of 5 USD payable by PayPal or Credit/Debit Card at www.prdpf.org using the Donate button.

During Webinar 009, you will learn the following

How Blood Cancer clinical trials are designed.

Why you need to know about Blood Cancer clinical trials.

Inclusion and Exclusion Criteria for Blood Cancer Clinical Trials.

Questions you need to ask before going into a Blood Cancer clinical trial.

Reminder – If you have a rare disease you should register for Webinar 009.

We regret that recordings will not be made of these Webinars. We want to ensure that patients and parents feel comfortable asking questions in a confidential way.

Webinar 009 is free to patients and parents of children with rare diseases. Paid or professional patient advocates will be asked to make a small donation of 5 USD payable by PayPal or Credit/Debit Card

Before you leave, make sure that you take the PRDPF! Research Survey

Take our confidential Research Survey. We are conducting this research survey so that we can advise policy makers about the needs of patients with rare diseases.

This is a confidential research survey. We will be analyzing the results and sharing them with you, and perhaps as a publication or a white paper. Our target is 1000 participants. Help us reach this goal.

We want to stay in touch with you. Click here to join our confidential mailing list. You will be receiving our periodic newsletters.

https://www.puttingrarediseasespatientsfirst.org/contact/

Rest assured that we will never share your contact information with anyone.

Find out more about Putting Rare Diseases Patients First!

Read our Blog https://www.puttingrarediseasespatientsfirst.org/blog/

Read our publications https://www.puttingrarediseasespatientsfirst.org/publications-and-books/

Purchase the Book on Clinical Trials –

Purchase the book at oup.com/us  Insert discount code AMPROMD9

Find out about the members of the Board of Directors https://www.puttingrarediseasespatientsfirst.org/board-of-directors-2/