Leadership and Volunteer Opportunities

  • Chief Operating Officer
    The Putting Rare Diseases Patients First! organization provides a unique opportunity for those wanting to serve patients with rare diseases. The Chief Operating Officer will be responsible for the operations of PRDPF!
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  • Vice President of Public Relations
    The Vice President of Public relations is responsible the development of all strategies for raising the profile of the Putting Rare Diseases Patients First! organization. The Vice President of Public Relations sits on the Board of Directors.
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  • Vice President of Patient Liaison
    The Vice President of Patient Liaison plays a crucial role in forging links with rare disease patients, patient groups and foundations. This requires someone who understands the rare disease space intimately and is well known
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  • Vice President of Marketing
    The Vice President of Marketing is responsible for marketing the Putting Rare Diseases Patients First! organization.   The role involves the development of strategies that will raise the profile of the organization worldwide.
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  • Pharmaceutical Liaison Associate
    This position involves forming links with pharmaceutical and biotechnology companies. This person must therefore be from that space. Someone with a large pharma position or background is preferred.
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  • Physician Liaison Volunteers
    Physician Liaison Volunteers will represent PRDPF! in forging links with clinics and physician offices where patients with rare diseases are treated. They will be responsible for communicating the information that is available from the PRDPF!
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