Webinar 008: The Seven Things You Need To Know About Clinical Trials for Rare Diseases
Do you have a rare disease? Does your child have a rare disease?
If you answered yes to either or both of these questions, it is crucial that you attend Webinar 008. Webinar 008 will give important information about clinical trials for rare diseases.
Webinar 008 will be held on 12 June 2019 at 8:00 AM PST [11:00 AM EST; 5:00 PM Central European] to 9:15 AM PST [12:15 PM EST; 6:15 PM Central European].
Webinar 008 is free to patients and parents of children with rare diseases Paid or professional patient advocates will be asked to make a small donation of 5 USD payable by PayPal or Credit/Debit Card
There’s No Better Time To Register for webinar 008 Than The Present!
During Webinar 008, you will learn the following seven things
About the drug development process
Why clinical trials are important
About the phases of clinical trials
How clinical trials are designed
Why clinical trials fail
About the informed consent process
You will be able to ask the questions about clinical trials you have not been able to ask up to this point
Before you leave, make sure that you take the PRDPF! Research Survey
Take our confidential Research Survey. We are conducting this research survey so that we can advise policy makers about the needs of patients with rare diseases.
This is a confidential research survey. We will be analyzing the results and sharing them with you, and perhaps as a publication or a white paper. Our target is 1000 participants. Help us reach this goal.
We want to stay in touch with you. Click here to join our confidential mailing list. You will be receiving our periodic newsletters.
Rest assured that we will never share your contact information with anyone.
Find out more about Putting Rare Diseases Patients First!
Read our Blog https://www.puttingrarediseasespatientsfirst.org/blog/
Read our publications https://www.puttingrarediseasespatientsfirst.org/publications-and-books/
Purchase the Book on Clinical Trials –
Purchase the book at oup.com/us Insert discount code AMPROMD9
Find out about the members of the Board of Directors https://www.puttingrarediseasespatientsfirst.org/board-of-directors-2/