Privacy Policy


Use of this Website and Privacy Policy

Terms and Conditions of Use of and


These terms apply to any content accessed and/or found on the website.

By using the Site, you agree to be bound by these Terms and Conditions, including the Privacy Policy. If you do not agree to all of these Terms and Conditions, you are not authorized to use the Site, in which case you should immediately exit and not use the site.


You must not self diagnose yourself for any diseases as a result of visiting the website. The information is provided on the website for information purposes only. There is no intention to replace your specialist physicians or primary care physicians. If you believe that you may have a rare disease, you should consult your physician.  PRDPF!, its officers, and volunteers, accept no responsibility or liability whatsoever for your health. Presentations, webinars, blogs, newsletters, are carefully constructed to avoid the semblance of replacing the care that must be provided by your physicians.


When Putting Rare Diseases Patients First! links to other websites, this is done by way of providing useful resources. We take no responsibility for content on these other websites, and are not responsible for the information on those websites. Sharing of links does not in any way imply endorsement of third party organizations.


As a condition of your access to and use of the Site, you agree to hold Putting Rare Diseases Patients First! its officers, directors, employees, agents, attorneys, and suppliers, and each of their respective successors and assigns, harmless from, and indemnify them for, all damages, costs, expenses and other liabilities, including, but not limited to, attorneys’ fees and expenses, relating to any claim arising out of or related to: (i) your access to and use of the Site and the content therein; (ii) your violation of these Terms and Conditions including the Privacy Policy, and any applicable law or the rights of another person or party; (iii) any dispute you have or claim to have with one or more users of the Site.


In no event and under no circumstances shall Putting Rare Diseases Patients First! its officers, directors, employees, agents, and attorneys be liable to you or any third party for special, incidental, punitive or consequential damages (including, without limitation, any loss of profits, lost savings, or loss of data) arising out of your (or any authorized user’s) or any unrelated party’s use or inability to use the Site, or your (or any authorized user’s) or any unrelated party’s reliance or use of information, products or services provided on or through the Internet, or that result from mistakes, omissions, interruptions, deletions of files or other data loss, errors, defects, delays in operation, service or transmission or any failure of performance of the Site.


THE SITES (INCLUDING, WITHOUT LIMITATION, ALL SERVICES AND CONTENT) ARE PROVIDED “AS IS” AND “WITH ALL FAULTS” WITHOUT WARRANTY OF ANY KIND AND THE ENTIRE RISK AS TO SATISFACTORY QUALITY, PERFORMANCE, ACCURACY AND EFFORT IS WITH YOU. There is no warranty, representation or guarantee that the Sites will continuously operate or be error free or that any problems will be corrected, or that any information, software or other material accessible from the Sites is free of viruses, worms, Trojan horses or other harmful components. Further, we do not warrant, guarantee, or make any representations regarding the use of, or the results of the use of the Sites either in terms of its compatibility with hardware or other software, its reliability, currentness, or otherwise; and you rely on the Sites solely at your own risk. ANY AND ALL OTHER REPRESENTATIONS AND WARRANTIES INCLUDING, BUT NOT LIMITED TO, ANY IMPLIED WARRANTIES OF MERCHANTABILITY AND/OR FITNESS OF THE PRODUCT FOR A PARTICULAR USE OR PURPOSE, QUALITY, COURSE OF DEALINGS, USAGE OF TRADE, INACCURACY IN CONTENT CAUSED BY OUR FAILURE TO PERFORM WITH REASONABLE CARE, QUIET ENJOYMENT OR NON-INFRINGEMENT ARE HEREBY EXPRESSLY DISCLAIMED.


Please see our Privacy Policy. Our Privacy Policy is part of and incorporated into these Terms and Conditions.


In using the website, taking part in the Webinars, reviewing Blogs, etc, you agree that exclusive jurisdiction for any dispute with Putting Rare Diseases Patients First! resides in the courts of California, and you further agree and expressly consent to the exercise of personal jurisdiction in the courts of the State of California in connection with any such dispute, including any claim involving Putting Rare Diseases Patients First! or its affiliates, subsidiaries, employees, contractors, officers, directors, telecommunication providers, and content providers.

These Terms and Conditions are governed by the laws of the State of California, without respect to its conflict of laws principles. If any provision of these Terms and Conditions is found to be invalid by any court having competent jurisdiction, the invalidity of such provision shall not affect the validity of the remaining provisions of these Terms and Conditions, which shall remain in full force and effect. No waiver of any of these Terms and Conditions shall be deemed a further or continuing waiver of such term or condition or any other term or condition.


These Terms and Conditions and Putting Rare Diseases Patients First! constitute the entire agreement between you and Putting Rare Diseases Patients First! | RARE Project with respect to the use of the Site.


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