Leadership and Volunteer Opportunities

PRDPF! is dependent upon two types of volunteers. The first type of volunteer takes on a leadership role. The leader is already a leader in corporate or government life. He or she will lead small teams to move the organization forward to the next stage of its development. All positions posted on this page are leadership roles.   Potential leaders could be retired or be working in a full  or part time day job. The leader must be willing to devote at least 5 hours of  time per week  to PRDPF!  The leader must have a track record of building organizations.

The other type of role is that of the Volunteer. Many people are interested in volunteering on short term projects. Volunteers are expected to work in team settings virtually, and to be able to work with the leaders to fulfill the goals of short term projects.

If you would like to be considered for leadership roles as shown on this page, please review the requirements carefully and then submit your CV or a resume, and a cover letter detailing why you are interested in the role. Send your details to Dr. Speid at LSPEID@PRDPF.ORG with Leadership roles in the subject line.

  • Chief Operating Officer
    The Putting Rare Diseases Patients First! organization provides a unique opportunity for those wanting to serve patients with rare diseases. The Chief Operating Officer will be responsible for the operations of PRDPF!
    Learn more
  • Vice President of Public Relations
    The Vice President of Public relations is responsible the development of all strategies for raising the profile of the Putting Rare Diseases Patients First! organization. The Vice President of Public Relations sits on the Board of Directors.
    Learn more
  • Vice President of Social Media
    The Vice President of Social Media is responsible for implementing the Direct to Patient Strategy espoused by the Board of Directors, using effective social media strategies and tactics. The Vice President of Social Media sits on the Board of Directors.
    Learn more
  • Vice President of Patient Liaison
    The Vice President of Patient Liaison plays a crucial role in forging links with rare disease patients, patient groups and foundations. This requires someone who understands the rare disease space intimately and is well known
    Learn more
  • Vice President of Marketing
    The Vice President of Marketing is responsible for marketing the Putting Rare Diseases Patients First! organization.   The role involves the development of strategies that will raise the profile of the organization worldwide.
    Learn more
  • Fund Raiser
    This is a critical position to the PRDPF! This person will be responsible for writing grants, soliciting donations from pharmaceutical organizations and patient foundations.
    Learn more